So it took me about ten hours in phone calls, faxing, walking to his office to sign yet another medical records release, and driving to get my medical records to the high holy best diagnostician in town. He is a rheumatologist, and my doc wants me to go to Mayo for answers on whatever the fuck this syndrome is, but thought it would be good to see him first. He is supposed to be able to figure out any autoimmune thing in the universe.
A, he did not read any of that shit.
B, he had me come to clinic for a 1200 appointment; I saw him at 4 and got out of there at ten of five.
C, he has no fuckin idea what the hell this is. He says it's not lupus and not RA, RA eaten and removed joints notwithstanding.
He basically agrees with the endocrinologist, that I had too much iodine from all the CTs and MRIs and it made the Hashimoto's antibodies attack like crazy. Not just my thyroid but muscles, brain, and guts too. He says that's so unusual that no one knows just why it happens and how long it takes for the antibodies to get off your case. He did point out that the flares are shorter and less outrageous, so there's a decent chance I will start having them more seldom. My goiter is already gone, and the endocrinologist doesn't believe in natural thyroid and is uninterested in changing my meds now that my TSH is below 1.
So I gave up on medicine and doctors and got on the Internet. Several seriously woo articles later and some typing on Amazon, I acquired dried thyroid and adrenal cortex pills. Oddly, they do not stink as you think they might. I have been taking them ten days.
I have lost five pounds.
The horrendous neck and back pain that showed up during the four hour wait for the rheumatologist is not receding as I would wish, but having my pants fit looser almost makes up for it. The one pain relief I have seen is that the fascia on my muscles is not exquisitely tender, which is nice.
Five down, forty-five to go.
A, he did not read any of that shit.
B, he had me come to clinic for a 1200 appointment; I saw him at 4 and got out of there at ten of five.
C, he has no fuckin idea what the hell this is. He says it's not lupus and not RA, RA eaten and removed joints notwithstanding.
He basically agrees with the endocrinologist, that I had too much iodine from all the CTs and MRIs and it made the Hashimoto's antibodies attack like crazy. Not just my thyroid but muscles, brain, and guts too. He says that's so unusual that no one knows just why it happens and how long it takes for the antibodies to get off your case. He did point out that the flares are shorter and less outrageous, so there's a decent chance I will start having them more seldom. My goiter is already gone, and the endocrinologist doesn't believe in natural thyroid and is uninterested in changing my meds now that my TSH is below 1.
So I gave up on medicine and doctors and got on the Internet. Several seriously woo articles later and some typing on Amazon, I acquired dried thyroid and adrenal cortex pills. Oddly, they do not stink as you think they might. I have been taking them ten days.
I have lost five pounds.
The horrendous neck and back pain that showed up during the four hour wait for the rheumatologist is not receding as I would wish, but having my pants fit looser almost makes up for it. The one pain relief I have seen is that the fascia on my muscles is not exquisitely tender, which is nice.
Five down, forty-five to go.